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ACTIVITIES & INITIATIVES OF MOTHER
‘MOTHER’- “A Support Group For Patients, Physicians and Public”
 
With the aim of popularizing the concept of Organ donation and Transplantation in Orissa to help prolonging the healthy life of the patients with End Stage Organ Failure, the MOTHER was registered on dt. 4.12.2006.

Immediately there after in January 2007 an awareness campaign was organized by way of distributing leaflets explaining the concept of Organ donation for a noble cause, both in Oriya and English languages.

On reading the leaflets many people used to Telephonically contact us to know more about the intended programme and the allied details. Some of them wished to pledge their organ immediately, and some wished to donate their body after the death. As far as possible we have tried to meet these people at their residences to explain things in greater detail to arouse awareness about and appreciation for the purpose of Organ Donation and Transplantation. But many prospective donors got disappointed when they came to know that there was neither the enabling rules for Human dead body donation nor for the Cadaveric donation of Organs in Orissa. However we kept continuing with our efforts for making more and more people aware about the concept.

Accordingly the Trust was formally launched on the 6th of May 2007 in the Rotary Bhawan, Bhubaneswar through the hands of Shri Biswabhusan Harichandan, the then Minister of Industries, Law & Rural Development of Govt. Of Orissa. In the same function the website of the Trust(www.mother.org.in) was launched and more educative and informative leaflets were distributed among the audience. There was active participation by the audience.

It was for the first time a National level seminar was organized on the 2nd and 3rd of June 2007 at Mumbai to which MOTHER was invited. Sri T.N.Panda, the founder Managing Trustee of MOTHER was elected as the East Zone Representative to the National Council of the newly formed National Deceased Donor Transplantation Network, having its registered office at Mumbai, to promote Organ Donation and Transplantation in the Country.

1. The World Organ Donation Day is observed on the 8th of August every year, the world over. MOTHER also observed it on the 8th of August 2007 in the hotel SURYANSH, Bhubaneswar with Hon'ble Justice K.P.Mohapatra, Former Judge of Orissa High Court as the Chief Guest. The detailed scenario of Organ Donation and Transplantation at the National and International level was presented by Sri T.N Panda. It was seen that the level of achievement of the Eastern Region in general and that of Orissa in particular is much below the National Level. Even the neighbouring Andhra Pradesh is miles ahead in Cadaveric donation and transplantation.

2. On the occasion of the 1st anniversary of MOTHER we organized the East Zone Meet of National Deceased Donor Transplantation Network(NDTN) at Bhubaneswar on dt. 9.12.2007.The programme was sponsored by KIIT University and it was held in their campus. There were participants from Andhra Pradesh, Bihar and West Bengal, even though all the 12 states were invited. Hon'ble Minister of Health and Family Welfare, Govt. of Bihar conveyed his consent to attend , but could not make it because of his sudden illness. However we had Dr. Vatsala M. Trivedi, the only lady transplant surgeon of the country, who is the chair person of NDTN as the Chief Guest of the function which was presided over by our patron Sri. S.B. Mishra , a former Chief Secretary of Orissa.

In course of the deliberations, it was gathered that everywhere the Transplant surgery was started in some Govt. Medical College/ Hospital and the surgical cost is cheaper by 50 percent compared to the private Hospital of the same locality.

Hence the East Zone Meet of NDTN unanimously adopted the following resolutions,

 
                                RESOLUTIONS
1. The east zone meet of National Deceased Donor Transplantation Net-work, the apex body in the country engaged in educating & motivating the people for Organ Donation unanimously resolves to urge upon the Govt. of India, the Government of the various states and the Union Territories to introduce Annual DADHICHI award as a matter of recognition and encouragement to be presented o the individuals or organizations rendering exemplary services to the cause of Organ Donation & Transplantation in the country.

2. Further, this Meet urges upon the Govt.'s of all the States of Eastern India to take suitable steps to start Organ Transplantation units in at least one of the Govt. establishments in each state at the earliest.


3. NDTN decided to bring out its Half Yearly News Letter and in the National Council Meet held at Kolkata on dt. 20.01.2008 , NDTN entrusted MOTHER with this responsibility. Accordingly the first issue of the News Letter was released on the 15th of August 2008 and Second issue has been released on dt. 26.01.2009, with Sri T.N. Panda the Managing Trustee of MOTHER as its Editor printed from Bhubaneswar.

In association with Health + plus division of INFOIN and Kalinga Institute of Medical Science(KIMS) of KIIT University, MOTHER arranged a week long awareness programme in the Adivasi Mela held in the Adivasi Ground, since dt. 26.01.2008 to dt. 01.02.2008. The stall was inaugurated by Sri. Chaitanya Prasad Majhi the then Minister of SC,ST & Tribal Welfare as the Chief Guest. The detailed leaflets were also distributed to all the visitors to the stall. A documentary film of nearly 20 minutes duration on Organ Donation and Transplantation was also being screened every evening.

4. The 2nd Thursday of March every year is observed as the World Kidney Day through out the World. MOTHER, in association with Indian Academy of Nephrology, Orissa Nephrology Forum, KIMS and Health + Plus division of INFOIN observed it in the premises of Hotel Crown on dt. 13-03-08 having Sri Sanatan Bisi, the then Hon'ble Minister, Health & Family Welfare, Govt. of Orissa as the Chief Guest. Hon'ble Minister promised to make the Regional Diagnostic Centers of Capital Hospital, Head Quarter Hospitals at Baripada, Bhawanipatna, Koraput and Sundargarh, which are not functioning since last three years, operational at the earliest. He also promised to take up with Govt. of India (GOI) regarding setting up of Organ Retrieval and Banking Organisation(ORBO) in Orissa when it was brought to his notice that GOI has announced in October 2007 to set up 10 such ORBO'S in the Country apart from the only one that is functioning in the All India Institute of Medical Sciences, New Delhi. It was also informed to him that MOTHER has taken up with the principal Secretary of Health and Family welfare department since December 2007, but to no avail.

5. As usual MOTHER observed the World Organ Donation Day on the 8th of August, 2008 in Red Cross Bhavan, Bhubaneswar, having Hon'ble Justice Laxmikant Mohapatra of Orissa High Court as the Chief Guest, where Prof. (Dr.) Hari Gautam, former chairman of University Grants Commission (UGC) and Shri Sarat Chandra Mishra, the Editor of The Samaj graced the occasion as Guests Of Honour.

Apart from the awareness program, the highlight of this event was the felicitation of 3 eminent doctors of Orissa who performed the 1st successful kidney transplantation of the state as far back as in June 1985 at V.S.S. Medical college, Burla. They are Prof. (Dr.) Dingar Meher, Prof. (Dr.) L.K. Sahu and Prof. (Dr.) S.K. Palit.

All the speakers including the Chief Guest lamented the long gap between the 1st and the 2nd kidney transplantation, which took place in Kalinga Hospital in 2002, and urged that law should be more patient friendly and the Govt. and the society should make all out efforts to popularize Cadaveric donation of organs. MOTHER was specifically advised to take up with Govt. Of Orissa to arrange to put the necessary rules in place to facilitate cadaveric donation and transplantation.

6. In order to facilitate greater awareness among the people, special half hour panel discussions were telecast on both Doordharshan and OTV.

7. MOTHER was fortunate to have H.E. the Governor of Orissa as the Chief Guest at its 2nd anniversary on Dt. 07/12/08 held in Rotary Bhavan, Bhubaneswar. Also in the dais was Shri B.K. Mahanti, the then Advocate General of Orissa as the Guest of Honour.

The highlight of this occasion was the felicitation of Mrs. Bijaylaxmi Nayak, a daily wage earner, who offered to donate the eyes of her 17-year old son, who was swept to death in the floods of Sept. 2008 at Rashulgarh, Bhubaneswar.

H.E. the Governor while describing MOTHER as a great institution pursuing a noble mission termed Mrs. Nayak as Supreme Mother. Learned Advocate General gave a lot of insight into the legal aspects of the organ donation and transplantation as legalized by the Transplantation of Human Organs Act – 1994 (THOA 1994). A few kidney donors and their related recipients described how they were pooling on well even after the donation and the transplantation.

8. On the 12th of March 2009, MOTHER in association with Indian Academy of Nephrology(IAN) and the Health + Plus division of INFOIN observed the World Kidney Day. We were happy to have Hon'ble Justice M.M. Das of Orissa High Court as the Chief Guest and Prof. (Dr.) Binayak Rath, the Vice-Chancellor of Utkal University as the Guest of Honour. While Justice Das desired that the gap between enactment of Law and its proper administration/implementation should be reduced (an example being THOA-94 itself, because no rules have been framed yet in Orissa to administer BRAIN DEATH) Prof. Rath promised to look into the long standing request of MOTHER to introduce the topic " BRAIN DEATH & ORGAN TRANSPLANTATION" in the curriculum of MBBS courses as has been done by the Maharashtra University of Health Sciences, Nasik on the request of NDTN.

9. The World Organ Donation Day of 2009 was observed on 08.08.09 having the Hon'ble Minister of Finance and Excise, Govt. Of Orissa Sri Prafulla Chandra Ghadei as the Chief Guest and Prof.(Dr.) Mangala Mohanty, Hon.secy. Indian Redcross Society, Orissa branch as the guest of Honour. Addressing the gathering Hon'ble Minister, though a part of the Govt., had the frankness of expressing regret that the Govt. has not moved even an inch in spite of the efforts of MOTHER for the last two years. However he promised the all help from his side. The meeting ended with interesting interaction between the speakers and the participants.

10. The 3rd anniversary of MOTHER was observed on 06.12.09 having Sri Prasanna Acharya, Hon'ble Minister of Health and Family Welfare, Govt. Of Orissa as the chief guest and Dr. Prasanna Patasani, the Hon'ble MP of Bhubaneswar, & Dr. Saheb Sahu, the Managing Director of Kalinga Hospital as the Guests of Honour. In view of the fact that the BRAIN DEATH has been formalised by way of an order MET-I-GA-33/08/12596 dated 26.11.09 issued by the Director, Medical Education & Training, who has been appointed by the Govt. Of Orissa as the Appropriate Authority, Donor Cards were distributed in the meeting.

11. In association with INFO INT., Indian Academy of Nephrology, MOTHER put up a stall in the mela Organised by Govt. Of Orissa in the ADIVASI Exhibition Ground during 26.01.09 to 09.02.09 to generate awareness and appreciation for Organ Donation among the visiting public. About 500 Donor Cards were distributed among the intending visitors and MOTHER is happy to record that 20 cards have been received back after due signatures from the intending pledgees.

12. In association with INFO INT., Indian Academy of Nephrology, MOTHER observed the World Kidney Day on 12.03.09.

13. On 08.08.09 MOTHER observed the World Organ Donation Day, having Sri Prafulla Ch. Ghadei, Hon'ble Minister of Finance and Excise, Govt. Of Orissa as the chief guest.

14. MOTHER observed its 3rd anniversary on 06.12.09 and were privileged to have Hon'ble Minister, Health and Family Welfare of Govt. of Orissa as the Chief Guest and the local MP as the Guest of Honour.

 
Initiatives
 
 
 
 
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